Perceptions of people with Parkinson’s on non-motor symptoms and functional ability

Authors

  • Cherie Leung School of Physiotherapy, University of Otago, Dunedin, New Zealand
  • Leigh Hale Centre for Health, Activity and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand https://orcid.org/0000-0003-2730-5843
  • Nicola Swain Centre for Health, Activity and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand https://orcid.org/0000-0002-2467-5796
  • Prasath Jayakaran Centre for Health, Activity and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand https://orcid.org/0000-0001-8126-5526

DOI:

https://doi.org/10.15619/nzjp.v52i2.360

Keywords:

Functional Ability, Non-motor Symptoms, Parkinson's Disease, Qualitative, Self-management

Abstract

Parkinson’s is the fastest-growing neurological disorder worldwide, exhibiting motor and non-motor symptoms. The condition impacts individuals at multiple levels with both motor and non-motor symptoms (NMS). This study qualitatively explored perceptions of people with Parkinson’s (PwP), NMS, and functional ability. Ten PwP took part in semi-structured phone or Zoom interviews. Data were analysed using the General Inductive Approach. Four major themes were identified: (a) diagnosis as a turning point; (b) nonmotor symptoms and functional ability; (c) self-management; and (d) significant others. The themes were further classified into 13 subthemes and 10 categories. Interaction between the four themes also emerged from the data. A complex nuanced impact was found on the relationships between the individual and their significant others. People with Parkinson’s experienced either a “vicious cycle” or a “virtuous cycle” of symptoms, which were dependent on a multitude of factors, for example, whether it is a “good” or “bad” day and the corresponding actions taken on these days. The findings provide key insights into tailoring advice and support into self-management of Parkinson’s, particularly of actions that can be taken for better outcomes.

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Published

26-07-2024

How to Cite

Leung, C., Hale, L., Swain, N., & Jayakaran, P. (2024). Perceptions of people with Parkinson’s on non-motor symptoms and functional ability. New Zealand Journal of Physiotherapy, 52(2), 85–97. https://doi.org/10.15619/nzjp.v52i2.360